Uncovering the Disease Burden of Untreated Pediatric TK2 Deficiency
7:21
Uncovering the Disease Burden of Untreated Pediatric TK2 Deficiency
6 months ago
reachmd.com
Thymidine Kinase 2 Deficiency (TK2d) Overview
1:33
Thymidine Kinase 2 Deficiency (TK2d) Overview
1.5K viewsDec 7, 2021
YouTubeCheckRare
Molecular Bypass Deoxynucleoside Therapy for Thymidine Kinase 2 Deficiency (TK2d) Expert Series
58:40
Molecular Bypass Deoxynucleoside Therapy for Thymidine Kinase 2 Deficiency (TK2d) Expert Series
875 viewsJul 5, 2023
YouTubeMitoAction
Uncovering the Disease Burden of Untreated Pediatric TK2 Deficiency
7:16
Uncovering the Disease Burden of Untreated Pediatric TK2 Deficiency
10 views5 months ago
YouTubeReachMD
Thymidine kinase 2 deficiency (TK2d) is an ultra-rare mitochondrial disease that can affect people in many ways. 💙💚​ Because it’s so rare, finding connection and understanding within the community matters. We are inspired every day by the courage of the TK2d community. Their strength drives us to keep moving forward, delivering on our promise to bring hope, connection, and care to this community.​ Learn more about how we’re supporting the TK2d community at https://bit.ly/4opPd1b #TK2dtogether
0:25
Thymidine kinase 2 deficiency (TK2d) is an ultra-rare mitochondrial disease that can affect people in many ways. 💙💚​ Because it’s so rare, finding connection and understanding within the community matters. We are inspired every day by the courage of the TK2d community. Their strength drives us to keep moving forward, delivering on our promise to bring hope, connection, and care to this community.​ Learn more about how we’re supporting the TK2d community at https://bit.ly/4opPd1b #TK2dtogether
32 views6 months ago
FacebookUCB USA
Jeremiah’s Story: Living with Mitochondrial Disease (TK2D)
13:54
Jeremiah’s Story: Living with Mitochondrial Disease (TK2D)
242 views6 months ago
YouTubeThe Power of Rare
MDA Celebrates FDA Approval of First-Ever Treatment for TK2 Deficiency (TK2d)
3:02
MDA Celebrates FDA Approval of First-Ever Treatment for TK2 Deficiency (TK2d)
961 views6 months ago
YouTubeMDA
1:04
Rare Muscle Disease Reversed? New Hope for TK2D Patients #shorts
3 weeks ago
YouTubeNeuromuscular Medicine Expert
6:43
TK2d Day (Latin American Spanish)
44 views8 months ago
YouTubeInternational Mito Patients
4:22
FDA Approves First Treatment for TK2 Deficiency: Doxecitine-Doxribtimine Explained
18 views6 months ago
YouTubeLatest Stories from People
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Rare Diseases: TK2d & Patient Insights
39 views2 months ago
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10:13
Life as a Toddler with a Progressive Disease (TK2D)
139.6K viewsJan 16, 2022
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Florence family raises awareness, celebrates victories for son with rare disease
8 months ago
wpde.com
Programs
Apr 15, 2015
tucsonyouth.org
0:30
Jeremiah Gracen TK2D Warrior on Reels
7.7K viewsApr 14, 2023
FacebookJeremiah Gracen TK2D Warrior
9:16
Improving Survival and Function in Pediatric TK2d with Nucleoside Therapy
3 weeks ago
YouTubeReachMD
1:29
As we go through this journey together, we do alot behind the scenes to educate others about the disease globally. Now just seems fitting to share this completed project. I am eternally thankful for the collaborative efforts between United Mitochondrial Disease Foundation and UCB Biopharma as they are true advocates to the core for rare diseases such as TK2D. If you know of any medical professionals who need copies or would even like to chat, please email us at info@tk2dfoundation.org. It's an h
9.9K viewsJun 18, 2024
FacebookJeremiah Gracen TK2D Warrior
2:58
MT1621: A Possible Treatment for Thymidine Kinase 2 Deficiency
1K viewsJan 17, 2022
YouTubeCheckRare
2:56
#tk2dawareness #livingwithtk2d #thrivingwithtk2d #mitochondrialdisease #rarediseaseawareness #raredisease #miraclebaby #keepthefaith #faithwithoutworkisdead #keepworking #inclusionmatters #worldmitoweek #findthecure #jeremiahgracentk2dwarrior #tk2d
121.5K viewsSep 18, 2023
TikTokjeremiahgracentk2d
MBA programs | Fisher College of Business
9 months ago
osu.edu
4:00
Please share to encourage others. Yesterday the FDA approved the first ever treatment for Tk2D, this is just the beginning and it’s such an honor to have been a part of research. Sharing a message of hope and thanks because God did it. Special thanks to Dr Hirano, Dr Minter, Jessica Altman, Cristy and everyone at UCB for sponsoring this clinical trial and believing with us, Margaret, Andy, Cassie, Phil and the whole of UMDF for being committed towards the future of Mito, to our providers, nurses
13K views6 months ago
FacebookJeremiah Gracen TK2D Warrior
1:03
UCB bags first EU approval for rare genetic disease TK2d #pharma #pharmanews #lifesciences #news
79 views3 months ago
YouTubepharmaphorum media limited
1:47
Thymidine Kinase 2 Deficiency (TK2d) Market Analysis | Patient Pool & Market Forecast
10 views4 months ago
YouTubeDelveInsight Business Research
1:30
#dancewithme #tk2dtogether #illumintaefortomorrow #thrivingwithtk2d #mitochondrialdisease #socamusic 🇹🇹 | Jeremiah Gracen TK2D Warrior
71K viewsOct 13, 2024
FacebookJeremiah Gracen TK2D Warrior
7:42
Jer stayed up late so he rested until almost noon today, thankfully his gtube kept him hydrated and fed. This morning we had our Medicaid visit and I almost felt relieved learning that finally the state was going to pay parents to be caregivers, until I learned that it would take away my nurse hours and cut his SSI. I was disappointed to say the least. Our caseworker was super helpful and I always appreciate her visits. Jer didn’t want to brush his teeth but I enjoy him expressing himself. He pl
6.1K views10 months ago
FacebookJeremiah Gracen TK2D Warrior
1:00
#goals #mobility #livingwithtk2d #jeremiahgracentk2dwarrior #practicemakesperfect #gobabygo | Jeremiah Gracen TK2D Warrior
51.4K viewsMar 15, 2023
FacebookJeremiah Gracen TK2D Warrior
11:59
Before bed last night, I looked over and Jer was trying hard to roll over. That one arm kept getting stuck but it didn’t stop him from trying again. Kids are so resilient and strong! Jer went to bed early and woke up early too. He wasn’t quite ready and dozed in between morning toons. I tried to get him to brush Mickey’s imaginary teeth but he wasn’t having it. I tried to warm hun up for floss day. He helped out somewhat and then we tasted some fruit. After chilling with big bro we worked on rol
172.9K viewsJun 11, 2023
FacebookJeremiah Gracen TK2D Warrior
0:35
Imagine breathing. Now think about moving throughout your day. For people living with the ultra-rare mitochondrial disease #TK2d, these seemingly simple acts can be daily struggles. Since this disease is ultra rare, creating a sense of connection is vital. We’re dedicated to helping others learn about TK2d, because raising awareness is an important step toward families navigating this condition gaining support. 💚💙 | UCB USA
179K views6 months ago
FacebookUCB USA
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